Finding treatments and a cure for CTNNB1 Syndrome to help children live their best lives possible while raising awareness and connecting families.

What is CTNNB1 ?

CTNNB1 Syndrome is a rare genetic disorder related to the CTNNB1 gene.

How We Help

By funding CTNNB1 research, we are creating a roadmap for a cure.

Get connected with other children and parents in the CTNNB1 community.

Learn how to get involved to support research and spread awareness.